Thursday, October 8, 2009

Stuffy nose helmet head =p

So we went to the surgeon on tuesday and everything from his end looks good! I figured as much. There was some concern that perhaps her difficulty gaining weight was related to her colostomy but I didn't think so. And neither did he. We are right on track for her colostomy reversal in January. It was so funny because he just kept telling her how cute she is and she LOVED it! She cried when he left the room. Haha =) As if she doesn't hear that enough from EVERYONE ELSE!

The helmet is going ok, it does not seem to bother her once its on. The only problem is getting her skin used to it. I liken it to breaking in new shoes. She gets these little red spots on her forehead, but we have this special cream so we'll see how it goes. I am fighting the urge to leave it off sometimes. Hasn't she had to put up with enough?! Sometimes I just have to remind myself that this is all temporary and she is tougher than I will ever know. So I just have to be tough too.

She and I have matching colds right now and I am convinced I have seen the saddest thing ever: cleaning out a stuffy nose on a baby. She was just looking at me so sad. "Mommy what are you doing to me?" So pitiful. Her whimper is so pitiful too. =( It's weird because this is first normal baby ailment we have had so far. It's refreshing to not have to take her to a specialist for this problem. haha

We are still touch and go on her feedings but thats nothing new. We are trying to find a happy medium between adding enough formula (the formula from the hospital, not the crazy new one) and not adding too much. We want to bulk up her calories as much as we can, but too much and it aggravates her acid reflux. It's a fun game we play! It will all get figured out eventually. She can't be tiny forever, although I do know that one day I will look back and wish she was little again.

I think that's it for now. We are going for a record 4 appointments next week so I am sure I will have loads to talk about. =)

No comments:

Post a Comment